Surfing Anyone?

WE HAD GONE AWAY ON A SHORT VACATION, PLAYED IN THE SWELLS FROM HURRICANE BILL UP IN MAINE (ON THE BOOGIE BOARDS) NOT QUITE UP TO SURFING YET.
Jeff had a tough time after about 30 min. hard for him to walk, sometimes he tries too hard to do the things he used to do so easily. He will get there, it just takes time. We still continue to laugh about things.
I continue to improve. Soon I will have a conversation with our specialist about the next session of medications. I am curious as to what he will say. So many of the symptoms have come and gone. At this moment, what I am experiencing are, creepy crawly sensations in my right shoulder, achy and stiff neck/shoulders, some stiffness when I get up from a chair but for now this is good.
I actually stood for 3 hours during the Bruce Springsteen concert in Mansfield.
Although my ankles and knees were really sore it was worth it.
We both continue to try to help others. For now the news about Lyme disease continues NOT to be a story on the front page of Massachusetts newspapers but hopefully, very soon, the laws will be changing so Dr's will be able to aggressively treat Lyme, educate themselves (because most of them haven't due to the recent laws) and truly be able to prescribe the most effective treatment without getting in trouble. Amazing how this disease is so widespread, yet, so ignored as a problem. That is until someone of importance comes down with it!!
Till next time!
P.S. I have started to paint again, feels great, nice to have inspirations and feel good enough to use them. This time I chose a 12" x 12" canvas. Usually I have only felt good enough to paint ACEO'S.

Feeling Better Again Round 2

Thats what it feels like, rounds in a boxing match. One minute your up, the next your down, not in such a short time of course but you can get what I mean.

I am feeling so much better, More energy, no depression, minimal pain. I actually went kayaking for about 2 hours yesterday, up river and then down. Was awesome, haven't done that in quite sometime. Now if I could only feel up to rock climbing I would be there. Maybe next spring!!

So things are looking up again. I am able to type better, think better and even spell better today. Its just good to feel like you can tackle anything.

Struggling with Setbacks (typical Lyme)

Sometimes you just feel like giving up. I know I can not, but some days when the symptoms come back you just feel like it.

Though not as severe most symptoms have returned and I continue with my daily swallowing of pills. Memory issues, saying what I want, misspelling words, minor pain, depression and tiredness have returned.
The depression I have stuggled with before but always have gotten through it.
I am normally a happy go lucky person, focusing on my artwork and creativity to get me through tough times. I am not quite sure the depression is related to Lyme but I will, as well as my husband, keep an eye on it.

When the symptoms do come back, which is expected because the treatment is killing them off, you feel like you will never feel good, pain free again. My husband as well as his sister are going through the same feelings, Jeff knows he can't give up, he coaches his sister, myself and others to keep going.

There is always something worse that can go wrong. I should be glad I am not dealing with cancer as so many of my loved ones are or have been.

At least I know that somewhere down the line that tiny shimmer of light will become more visable and within reach.
For those of you who feel the same, keep on going, talk it out, write it down, do whatever you can to keep the faith and smile alot.

The Return of Pain

It has been 4 weeks since I've been on my med's and the pain has come back. Although not as bad in the lower back, ankles and wrists, but in my knees, thighs, hips and buttock. I have hiked and swam even though the pain is there (like I always did when I didn't know I had Lyme). I know that it will subside again but it freaks me out a bit to think that these things are dying off inside my body. How gross!! I have been very tired again and yes you begin to think that the pain will return and never go away. I have to keep taking the med's even though I absolutely hate swallowing pills.
I cringe everytime I have to. I am waiting right now to take my morning ones.


I am so happy to see many people have read my husbands blog. He is truly helping others and that is very important to him. He has been having some of the pain return also but I made him come to the beach the other night thinking he would like to try a swim again. (He had been very nervous about getting back in the water and swimming) He loves to swim and the thought of not being able to or having pain and going under was terrifying. He did extremely well as I watched him go back and forth along the bouys.
Then he played catch with Trevor in the water.

I know that this is a journey that has many hills and valleys but I am happy to know that we continue to travel along it regardless of the deep valleys and the steep hills.