Tuesday, November 24, 2009

Shame on Me

Last night I slept so good, hardly any pain, which was making me toss and turn the for quite a few nights, and I really felt rested and ready to go. I went off on my errand to Pompret, CT about 60 minute ride. On the way home I was getting more and more tired. I had planned on doing some more errands but by the time I arrived home I was exhausted and just looking forward to a nap.
This is the disappointing part of LYME.
You feel good one moment and then completely different hours later.
I really shouldn't complain since my husband is sicker and he just keeps going regardless.
shame on me

Monday, November 23, 2009

In the Middle of a Stupid Streak

Oh Boy, I am seriously in the middle of a stupid streak. Its hard to remember things, hard to find the words that I need to use, hard to spell simple words. What is even harder is at work they know I have Lyme but they don't understand the symptoms that come and go. I made quite a few mistakes Sat at work and was really embarrased about it. I jokingly said to my boss, its the Lyme disease, and she said yeah, sure, in a nice way of course. She is very sweet but so many people don't see you as sick cuz on the outside you look fine (most of the time) well, anyway I do. If I was falling down of slurring words they would understand better.
I am hoping I am not going to eventually lose my job.
I feel bad for my husband as his journey in recovery has been so much harder. He faces the same reactions in the people he meets and he is working his ass off for our family regardless. Hey I try to buy a winning lottery ticket but that just never happens. Oh Well, we all must go on, doing the best we can and dealing with life.

Friday, November 20, 2009

Just Joined a great support Group Online

This morning while I was surfing online I found this great site http://www.mdjunction.com/ A wonderful place to connect with others when you need support for an illness.

After my husband was FINALLY diagnosed with CHRONIC LYME Disease in June 09, he and I just want to help others with it.
I feel that his blog can help so many who are experiencing the same thing.

My blog was first created for me to keep a bit of a journal and if it helps others thats fantastic.

For anyone that wants to talk, not a problem! We are both here for you, to help in anyway we can.
Take care everyone, there is a light at the end of the tunnel. A good light!

Monday, November 9, 2009

Physical with my Primary.

Saw my primary today. Had a physical. This is the first time she heard I had Lyme Disease. I didn't send her any info from my Lyme specialist mostly because it seems Dr's around here just dont' get it, still!
She was surprised and asked me about the meds I am on. While punching all this info into the computer, she asked me questions about symptoms. All and all not seeming too interested in what I had to say. You know, I was there for a physical and she only had 5 minutes to see me.
Boy, I am so spoiled from my Lyme specialist. After all he acutally sits and listens to what I have to say, really listens. I think its time to find a new primary. Am I alone in this? Will I find a primary that will take the time needed to talk to me?
Just venting a bit.