feeling better

Things are feeling mostly back to normal. I had a few days were I felt air hungry, some days with heart palapatations, forgetting things less but still here and there. I think that is one of the scariest things for me. When I truly forget something I did. Can't wait to be finished with all the meds. I still have some depression (working on it) but probably due to money stress. Things are getting much tighter with cash. Its nice to go to the specialist but I feel very strapped with my funds, not to mention I have a root canal going on and that is just more $$$.
Jeff is feeling better also, he is also stressed but is trying very hard to focus on his new job. He is doing fantastic at it. Somedays are harder than others, he still gets ringing in the ears, especially when he drives a lot.
We are both exercising a few times a week, trying to get back in shape for the summer. Can't wait to hit the beach, maybe surf, and Jeff can finally get some sun (he is off that medication)
Till next time.

LLMD appointment

My husband and I went to CT to see the LLMD. It was another follow up appt for my husband. He may finally be able to get the picc line IV medication that he desperately needs to attack the bacteria quicker. Hopefully our new insurance will approve. Sad when you have to be rich to get the treatment you really need. He is on differnt medication anyway, now he is eating dairy products and says he is feeling much better on these meds.

Lyme is one hell of a disease. YES IT IS A DISEASE that is hardly recognized and some say it is not real, that it does not exist. That shocks me. Ticks can carry so many bacteria that can slowly kill you or quickly kill you.
YES, IT CAN KILL YOU.

I wish that our recovery is much quicker than it has been. It is a long, painful recovery. Painful because of the Herxheimer reaction. Killing the spirochites produces a toxin in the body which usually makes the treatment feel like it not working, sometimes creating a more painful cycle that is much worse than you ever experienced. I must say that even though the pain is great, knowing those little bastard spirochites are dying off makes me happy.
Some day there will be a happy ending to all who have Lyme disease.

Shame on Me

Last night I slept so good, hardly any pain, which was making me toss and turn the for quite a few nights, and I really felt rested and ready to go. I went off on my errand to Pompret, CT about 60 minute ride. On the way home I was getting more and more tired. I had planned on doing some more errands but by the time I arrived home I was exhausted and just looking forward to a nap.
This is the disappointing part of LYME.
You feel good one moment and then completely different hours later.
I really shouldn't complain since my husband is sicker and he just keeps going regardless.
shame on me

In the Middle of a Stupid Streak

Oh Boy, I am seriously in the middle of a stupid streak. Its hard to remember things, hard to find the words that I need to use, hard to spell simple words. What is even harder is at work they know I have Lyme but they don't understand the symptoms that come and go. I made quite a few mistakes Sat at work and was really embarrased about it. I jokingly said to my boss, its the Lyme disease, and she said yeah, sure, in a nice way of course. She is very sweet but so many people don't see you as sick cuz on the outside you look fine (most of the time) well, anyway I do. If I was falling down of slurring words they would understand better.
I am hoping I am not going to eventually lose my job.
I feel bad for my husband as his journey in recovery has been so much harder. He faces the same reactions in the people he meets and he is working his ass off for our family regardless. Hey I try to buy a winning lottery ticket but that just never happens. Oh Well, we all must go on, doing the best we can and dealing with life.

Just Joined a great support Group Online

This morning while I was surfing online I found this great site http://www.mdjunction.com/ A wonderful place to connect with others when you need support for an illness.

After my husband was FINALLY diagnosed with CHRONIC LYME Disease in June 09, he and I just want to help others with it.
I feel that his blog can help so many who are experiencing the same thing.

My blog was first created for me to keep a bit of a journal and if it helps others thats fantastic.

For anyone that wants to talk, not a problem! We are both here for you, to help in anyway we can.
Take care everyone, there is a light at the end of the tunnel. A good light!

Physical with my Primary.

Saw my primary today. Had a physical. This is the first time she heard I had Lyme Disease. I didn't send her any info from my Lyme specialist mostly because it seems Dr's around here just dont' get it, still!
She was surprised and asked me about the meds I am on. While punching all this info into the computer, she asked me questions about symptoms. All and all not seeming too interested in what I had to say. You know, I was there for a physical and she only had 5 minutes to see me.
Boy, I am so spoiled from my Lyme specialist. After all he acutally sits and listens to what I have to say, really listens. I think its time to find a new primary. Am I alone in this? Will I find a primary that will take the time needed to talk to me?
Just venting a bit.

Are You Not Feeling Well?

Not feeling well?
Dr's can't find what is wrong?

If you seem to have health problems that no one can pinpoint to a certain cause you should check out the list of symptoms for Lyme Disease. It is amazing how many symptoms there are and what Dr's many times actually diagnose instead of Lyme. Please check this list at:http://www.canlyme.com/patsymptoms.html

It doesn't hurt to get the Western Blot test for Lyme but definately have the Dr send it to the best lab in the country in California. Usually it is an out of pocket cost for this but it is very worth it!