Visit with my Lyme Specialist

Wed. Feb 24th, we drove to see our Lyme Specialist in CT.
I was feeling much better and had in my mind that maybe, just maybe I would be getting of the meds. Not the case.
Dr. Sabovic went over everything, what symptoms do I still have? The whole list.....even though I feel 80% better than when I was first diagnosed we have a while to go yet. A new round of antibiotics, oh no, Doxy, so I have to be extremely carefull in the sunshine!
The symptoms that I still experience were lower back pain, hip pain, thigh aches and knee pain, upper back shoulder stiffness, pain, creepy crawly in my left shoulder, and a vibration in my right thigh. Although these symtoms are drastically reduced from when I first started treatment it still means Lyme is still there. I will be on some new supplements to help fight Lyme that may be encased in biofilm. If you read up on lyme you will understand. Antibiotics alone will not penetrate the biofilm so the supplements weaken the biofilm and allow the antibiotic to get inside.

So looks like another 2 months on so on this medicine (as my job allows) since I work in the sun a lot at the Greenhouse. Then maybe 2 weeks on and 2 weeks off. We will test in 2 months for Lyme again and follow that up when all said and done for 2 years to make sure it is all gone.

Though i am depressed that I still have awhile to go, I do feel much better.
Its hard to complain when I see people who are so disabled by Lyme and struggle daily to fight this horrific disease.
God bless you all. You are in my prayers.

Are You Not Feeling Well?

Not feeling well?
Dr's can't find what is wrong?

If you seem to have health problems that no one can pinpoint to a certain cause you should check out the list of symptoms for Lyme Disease. It is amazing how many symptoms there are and what Dr's many times actually diagnose instead of Lyme. Please check this list at:http://www.canlyme.com/patsymptoms.html

It doesn't hurt to get the Western Blot test for Lyme but definately have the Dr send it to the best lab in the country in California. Usually it is an out of pocket cost for this but it is very worth it!

Surfing Anyone?

WE HAD GONE AWAY ON A SHORT VACATION, PLAYED IN THE SWELLS FROM HURRICANE BILL UP IN MAINE (ON THE BOOGIE BOARDS) NOT QUITE UP TO SURFING YET.
Jeff had a tough time after about 30 min. hard for him to walk, sometimes he tries too hard to do the things he used to do so easily. He will get there, it just takes time. We still continue to laugh about things.
I continue to improve. Soon I will have a conversation with our specialist about the next session of medications. I am curious as to what he will say. So many of the symptoms have come and gone. At this moment, what I am experiencing are, creepy crawly sensations in my right shoulder, achy and stiff neck/shoulders, some stiffness when I get up from a chair but for now this is good.
I actually stood for 3 hours during the Bruce Springsteen concert in Mansfield.
Although my ankles and knees were really sore it was worth it.
We both continue to try to help others. For now the news about Lyme disease continues NOT to be a story on the front page of Massachusetts newspapers but hopefully, very soon, the laws will be changing so Dr's will be able to aggressively treat Lyme, educate themselves (because most of them haven't due to the recent laws) and truly be able to prescribe the most effective treatment without getting in trouble. Amazing how this disease is so widespread, yet, so ignored as a problem. That is until someone of importance comes down with it!!
Till next time!
P.S. I have started to paint again, feels great, nice to have inspirations and feel good enough to use them. This time I chose a 12" x 12" canvas. Usually I have only felt good enough to paint ACEO'S.

MY SYMPTOMS

Since a few years back I had steadily become more achy in the knees, wrists, ankles and lower back. I truly thought that it was age related. Maybe some of it is. My thighs would also ache. Until this past year I noticed other symptoms but as I said before that they were mild and sporadic. These are some of the most recent:

increased motion sickness

short term memory problems

stabbing pains that last only seconds in various places such as, ankles, thigh, side, head, wrist, hand

my eyes went blurry one day while talking to a customer at work, both were blurry and then the right eye vision started to shake

extreme fatigue on occasion, tired most of the time

hard to concentrate

heart skipping beats, or beating funny for a few seconds

a slight buzzing in one ear

weakness in the knees and wrists

droopy eyelid

nausea

and I have notice over the last year and a half that spelling easy words was very hard

The most recent symptom was ear pain when I was chewing, now it has moved to the jaw, TMJ

I have started on the medications and supplements (one night and two days now) and noticed a change the next day. I wasn't achy at all, felt wide awake a ready to go. Even my eyes felt wide open. I ended up with nausea and diarrhia for the first couple of days but it is settling down. The Dr. said usually the symptoms get worse before they get better so we shall see. I know that my husband felt good the next day when starting his meds and then got worse for a few weeks.

Today I don't have as much energy and it is difficult to type and spell correctly.

I have worked in my garden planting flowers and weeding today, took my son out and now I am home writing this but plan on relaxing on the couch for a bit.

Feeling like a new person yesterday was amazing and I can't wait to feel that way forever.