Still Fighting the Fight

Still fighting the fight, :(
Sad but true, when you think its over, its not. But I am still fighting the fight.
Back on medications 2 weeks on and then 2 weeks off. I delayed getting back on them
due to a "turned 50" procedure that was recommended. So after that was done I got back on. 2 weeks I'm thinking great I don't feel any difference. Just when the 2 weeks were almost over I started with hip, knee and ankle pain along with one foot aching. Two days later (I had to unload 52 plant boxes from an 18 wheeler and by the time I was finished with 3 loads hauling from one place to the other I had to lay down. Hurting from head to toe I didn't move a muscle for about an hour on the couch, then I had to get up and unload each box and put thousands of plants away. I was totally exhausted and hurting for 3 days after that. I ended the meds on the 3rd day after that to begin my 2 weeks off. I did notice the pain diminish. So I am thinking that was all Herxing. We'll see when I begin my 2 weeks on again.
NOT LOOKING FORWARD TO THAT.
One thing I did do in October was another art/craft show for 3 days. When I do those I pass out free information on Lyme disease and most people want to talk. Its nice to just get educational material out there especially in MA.
I still travel (along with my husband) to Bridgeport, CT. to see our lyme specialist. He is amazing!!! We have helped so many others and we met one of the families on our last trip there. We (especially my husband Jeff) got hugs and kisses and praise from the mother and from the young man. He is on his way to better days. I love that part of it. HELPING OTHERS!! My husband does more of that for people he meets. Just to see happiness and relief that they have found some actual help.
Well onward and upward is all I can say now.
Fight the fight and never give up!
PEACE

Its been awhile!

Yeah, so what.....its been awhile. I know. I am trying to ignore the Lyme thing. Its bee too long, met too many other people who have it or think they do or are seriously ill from it. So sad. Still frustrating!

I went for another Dr visit this summer. He thought I was almost done with it. He is a bit late getting back with test results though. Anywho, the tests show I still have Barbesia and 4 Lyme bands. I didn't call him yet to see whats next. One part of me says forget about it and the other part knows better.

Lyme sucks, no if's and's or but's about that.

I was on the 2 weeks on meds and then 2 weeks off but now I think that will change. Can't wait for this to be over, but then again I am afraid to get bit. Actually had a tick on me yesterday, in my ear.
Never felt it but I think I got it before it attached.

I hate them. I think we can live in the world without ticks......

till next time

The Return of Pain

It has been 4 weeks since I've been on my med's and the pain has come back. Although not as bad in the lower back, ankles and wrists, but in my knees, thighs, hips and buttock. I have hiked and swam even though the pain is there (like I always did when I didn't know I had Lyme). I know that it will subside again but it freaks me out a bit to think that these things are dying off inside my body. How gross!! I have been very tired again and yes you begin to think that the pain will return and never go away. I have to keep taking the med's even though I absolutely hate swallowing pills.
I cringe everytime I have to. I am waiting right now to take my morning ones.


I am so happy to see many people have read my husbands blog. He is truly helping others and that is very important to him. He has been having some of the pain return also but I made him come to the beach the other night thinking he would like to try a swim again. (He had been very nervous about getting back in the water and swimming) He loves to swim and the thought of not being able to or having pain and going under was terrifying. He did extremely well as I watched him go back and forth along the bouys.
Then he played catch with Trevor in the water.

I know that this is a journey that has many hills and valleys but I am happy to know that we continue to travel along it regardless of the deep valleys and the steep hills.

UPDATE

IT HAS BEEN ALMOST 10 DAYS SINCE I STARTED THE MEDICATION. I TRULY CAN'T BELIEVE THE DIFFERENCE. THE CHRONIC BACK PAIN THAT I EXPERIENCED FOR 4 YEARS IS GONE. TO BE PAIN FREE IS AMAZING. NO MORE ACHES IN MY OTHER JOINTS THAT LAST ALL DAY OR ALMOST EVERY DAY. I FEEL LIKE A NEW PERSON.

MY TMJ HAS DISAPPEARED.

THERE ARE DAYS WERE I FEEL TIRED BUT NOT THE KIND OF TIRED I USED TO GET.

SO THINGS ARE LOOKING GREAT!